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Our New/Old Normal, part 2
continued from part 1It took a couple of months to finish and the final report itself is 21 pages long. The school psychologist had Alexander self report, she had his teacher, OT and ST therapists...
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Our New/Old Normal, part 3
continued from part 2I went back to the office and as I worked my mind kept churning the same questions over and over. How could I have missed this? How could we have explained away so many things?...
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Making a Difference Award
The following is the text of the Delaware County Right to Education Task Force nomination for a Making a DifferenceAward that I submitted for Sophie’s friend Eliza. The Making a Difference...
View ArticleCub Scouts Awards
We enrolled Alexander in Cub Scouts in the fall. As a Wolf he interacted with new and old friends and learned new skills. Tonight we had our end of year awards ceremony and graduation to the next...
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Ladies Who Lunch
Helena, (A.K.A. the Schmoog or Schmoogie) and I had a great day together. It started in court for my hearing to contest two tickets related to our annual van inspection and emissions certification....
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Wood Rot & Carpenter Bees
When we bought our home two years ago we didn’t have rotten wooden window frames, or so we thought. Being from the midwest, we were unfamiliar with the damage that carpenter bees can do on fascia...
View ArticleSummer Wind
Mark’s paternal grandmother Margaret went to bed as usual on Friday, July 19th. My birthday. Sometime in the night she crossed over, warm in her bed. Though she was 92 her passing took us all by...
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Feeding School
Sometimes kids don’t eat. I’m not referring to picky eaters who hate lima beans. (Doesn’t everyone?) I’m talking about kids that for one reason or another have serious eating problems not caused by...
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The Trouble with Food
(New here? I suggest you read the first post on the Children’s Hospital Day Feeding and Swallowing intensive program, HERE).It was going so well! Week 1 of intensive feeding school got us to the...
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Buddy Walk 2013
Team Sophie rocked our 7th year of participating in the Buddy Walk for Down syndrome awareness. To be honest, I wasn’t sure we would be doing it this year for a variety of reasons. I formed a new...
View ArticleRegenerate
When I started this blog 5.5 years ago I wanted to come up with a name that had meaning. Change the G to a J and you get ReJenerationS which has my name in the middle and my initials (JRS). It nods...
View ArticleEmulating Wonder Woman
continued from part 1, HEREAs a tot my heroine was Wonder Woman. Beautiful, strong, justice fighter and feminist icon, I didn't just look up to her. I wanted to BE her. According to family lore, my...
View ArticleBionic Woman
continued from part 2, HERE.I did my due diligence, believe me. Spinal surgery isn't something you jump into just because one or two specialists tell you to. The first neurosurgeon I met with...
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Gratitude
Yesterday Sophie went to her friend E’s “Birthday Party in Paris!” I think the scarf and blue stripes fit the theme quite well. Soph actually kept the scarf on the whole time. E’s house was...
View ArticleLast Day of School 2014
Yea, though I battle through the valley of the shadow of IEP season, I shall fear not using the Procedural Safeguards: for the law art with me.With a brutal winter and a ton of snow days, our school...
View ArticleIndependence Day
We decided to take this year off from hosting our annual Garrett Hill parade watching party. We just weren’t up to the work involved in party prep. Rolling out of bed late, I grabbed a quick shower...
View ArticleBeyond Awareness
October is my favorite month of the year for many reasons; Halloween, pumpkin flavored everything, football, apples and cider, a chill in the air, turning leaves, hay rides, scary movies, footie pj’s,...
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Joyous May Day 2015
The winter was long and hard and we are limping to the finish line of this school year. For thousands of years when Spring was in full bloom the people would pause to celebrate the coming of the warm...
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No Pity. No Charity.
“Children with disabilities are amongst the world’s most marginalized and excluded children.”---World Health Organization, World Bank, 2011I will never give up. Out here in Philly we have formally...
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Trunk or Treat 2015
The PTO put on our school's first Trunk or Treat on this fine October evening. For those unfamiliar, this is an event where trunks are popped, decorated, and children travel from car to car to Trick...
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The Most Sincere Pumpkin Patch
Once upon a time the kids did not have school and the weather was perfection so we spent the day on a farm. A wagon took us to the patch where we picked pumpkins still attached to their vines. We...
View ArticleBright Beltane Blessings
Beltane post from 2015, HEREOnce again our family celebrated with dinner outside, dancing the Maypole, and making May Day baskets (cups decorated with stickers and filled with popcorn and candies)....
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